conditions
Acoustic neuroma 
: www.bana-uk.com/ A type of tumour that occurs in the brain and develops from the lining of the nerve that connects the ear to the brain (vestibulocochlear nerve.)
Addison's disease : www.addisons.org.uk is a rare, chronic condition brought about by the failure of the adrenal glands, also known as primary adrenal insufficiency or hypoadrenalism. Information can be found at Addison's disease or the NHS link.
AIDS or HIV The Terrance Higgans Trust : ww.tht.org.uk offers information on all stages of HIV or AIDS and support for living with HIV long-term.
Avert : www.avert.org is an international HIV and AIDS charity based in the UK, working to AVERT HIV and AIDS worldwide.
- : www.nhsinform.scot
- You do not need to inform the DVLA if you are being treated for HIV or AIDS
Alzheimer's Scotland : www.alzscot.org/ provide information to help people with dementia and their families and carers. Dementia is the progressive loss of the powers of the brain. There are many kinds of dementia but the most common is Alzheimer's disease other types of dementia include vascular dementia, Lewy body dementia, frontotemporal dementia's, Pick's disease and alcohol-related dementia's.
Ankylosing Spondylitis : www.nass.co.uk provide information to help for this type of chronic arthritis that affects parts of the spine, including bones, muscles and ligaments, it can vary, but most people experience back pain and stiffness. Ankylosing Spondylitis can be severe, with around one in 10 people at risk of long-term disability.
Arthritis, or Reiter's syndrome : www.versusarthritis.org/ , provide information to help suffers of Arthritis. Most people with Arthritis will experience pain and difficulty moving around, the Arthritis pain can range from very slight to very severe. There are over 200 kinds of rheumatic diseases. Two of the most common forms of Arthritis are Osteoarthritis and Rheumatoid Arthritis. Arthritis can affect people of all ages, including children.
This website still developing.
Ataxia : www.ataxia.org.uk offer advice, information and support to People with Ataxia and their families and carers, to give those with the condition the highest possible quality of life.
Autism syndrome and Asperger : www.autism.org.uk provide information to help both families and people who are affected by the autistic spectrum disorders (ASD).
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Behçet's disease : Behçet's.org.uk provide information and support for people with Behçet's disease and for those who care for them, this includes financial aid in hardship.
Bipolar disorder : www.bipolaruk.org/ provide information and support to help both families and people who are affected Bipolar disorder as it can have a significant impact on someone’s life.
Brain and Spine Foundation : www.brainandspine.org.uk/ in 1992 to provide information and support to people affected by brain and spine conditions in the UK such as Brain tumours, Hydrocephalus (Water on the Brain), Shunts, spinal muscular atrophy and Creutzfeldt-Jakob disease.
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Cancers : www.cancerresearchuk.org/ provide information and support to the many different types of cancer. For information on a specific cancer click the NHS link below to get started. Help for families is provided through Cancer Support Scotland : www.cancersupportscotland.org/ and also : www.macmillan.org.uk/
Coronavirus Latest guidance about COVID-19 from NHS Scotland and the Scottish Government, including social distancing and stay at home advice.
Cerebral palsy : www.capability.scot offer advice, information and support to People by working across Scotland we provide care and support to meet your individual needs at every stage of your life
Charcot-Marie-Tooth disease (CMT) : www.cmt.org.uk can help signpost you to the right consultant, or send you information for a school, or for family, send you guides to claiming benefits and so much more.
Chest, heart and stroke Scotland : www.chss.org.uk/ are Scotland’s health charity supporting people and their families across Scotland with chest, heart and stroke conditions. We want to make sure life living with a chest or heart condition or after a stroke is a life lived to the full.
Crohn's and Colitis disease : www.crohnsandcolitis.org.uk/ offer confidential support services provide practical information and support, We aim to provide clear, accurate and balanced information about Crohn’s Disease, Ulcerative Colitis and other forms of Inflammatory Bowel Disease.
Chronic Fatigue Syndrome or Myalgic Encephalitis : www.meassociation.org.uk The ME Association aims to support people with ME/CFS through all stages of their illness. Myalgic Encephalomyelitis Association 0ur information centre gives you clear, balanced information about Myalgic Encephalomyelitis
Complex Regional Pain Syndrome : www.burningnightscrps.org/ Burning Nights CRPS is a Debilitating painful chronic condition that is poorly understood, formerly know as Reflex Sympathetic Dystrophy Burning Nights provide information, suggestions and support for people who suffer with CRPS
Cystic Fibrosis : www.cysticfibrosis.org.uk/ Living with Cystic Fibrosis (CF) can be challenging, but it doesn't have to stop you from going to school, having a family or getting a job. Cystic Fibrosis Trust provide a full life cycle of information.
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Deafness or Hearing impaired : www.deafaction.org/ Today, Deaf Action delivers a range of services to the estimated 950,000 people in Scotland with sensory support needs, including those who are blind, partially sighted, deaf, deafblind and hard of hearing.
Diabetes UK : www.diabetes.org.uk/ offers information and support, plus much more for people and their families who are living with Type 1 and Type 2, and other types of Diabetes.
Disabled Children : www.theyardscotland.org.uk/ The Yard offers disabled children and young people, and their siblings, the chance to experience creative, adventurous indoor and outdoor play in a well supported environment. It is a unique, safe space where children and young people experience truly inclusive play.
The yard is entry by membership only, and there is a fee attached, However one membership can get the child into anyone of the Yard complexes, Edinburgh,(22 Eyre Place Lane,Edinburgh, EH3 5EH,) Dundee (4 Drumlanrig Place, Mid Craigie, Dundee, DD4 8HZ,) and Kirkcaldy(Argos Centre, Appin Crescent, Kirkcaldy, KY2 6EJ,)
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Epilepsy Scotland : www.epilepsyscotland.org.uk/ has a free confidential helpline. Epilepsy Scotland helpline provides information, help and emotional support to those affected by epilepsy. Epilepsy Scotland also provide information and support to professionals, for example social workers, GP's, nurses, teachers, care workers and employers.
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Fibromyalgia : www.fmauk.org/ There is no known cure for Fibromyalgia, which is one of the reasons that FMUK continues to campaign for more awareness and more funding for research. FMAUK is a charity that offers information and support to people with fibromyalgia.
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Glomerulonephritis : www.kidney.org.uk The NKF is the UK's largest provider of kidney related medical information leaflets. NKF runs the only UK Helpline dedicated to kidney patients with two fully trained, experienced advisers providing a 5 day per week service to kidney patients, carers and healthcare professions and Renal Units.
Guillain-Barré syndrome : gaincharity.org.uk/ commitment is to support those touched by GBS | CIDP and variants so that every patient has access to an early and accurate diagnosis, proper treatment, and the opportunity for a full recovery.
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RNID : rnid.org.uk National charity supporting people with hearing loss, deafness and tinnitus. Lots of information about different types of hearing aids (Dalkeith Library run a Hearing aid support service.) Also Managing tinnitus section.
Hemianopia : sightscotland.org.uk Hemianopia is an eye condition related to stroke that effects your field vision. It can cause you to lose one half of your visual field, meaning that you may not be able to see either to the left or right of the centre of your field of vision in both eyes. Please use Search Scotland Search function for more information.
Haemophilia Society : haemophilia.org.uk/ is the only UK wide charity for all those affected by bleeding disorders. We help people with bleeding disorders to lead fulfilling lives, make informed choices and to support and inspire others.
Hepatitis The Terrance Higgans Trust : www.tht.org.uk/ offers information on all types of Hepatitis, with links to Hepatitis A, Hepatitis B, and Hepatitis C.
Huntington's disease : hdscotland.org offer help to people living with Huntington’s disease to live a better life. They improve care and support services for people with Huntington’s disease, educate families and professionals, and champion people’s rights.
Hydrocephalus : www.hydrocephalusscotland.org.uk You can find information about different types of hydrocephalus, who is affected and how it is treated.
Hyperhidrosisas : hyperhidrosisuk.org If you sweat more than average or have hyperhidrosis, this website contains information to help you live with hyperhidrosis and the support for you, if you can't find the answer you are looking for within there pages you can contact them.
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Insomnia : www.sleepsociety.org.uk/ The British Sleep Society (BSS) is a professional organisation for medical, scientific and healthcare workers dealing with sleeping disorders. We are also here to help sleep practitioners in the private field. We are a registered British charity and our ultimate aim is to improve public health by promoting education and research into sleep and its disorders
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Joint Mobility and Hypermobility : hypermobility.org/ is run by qualified professionals and trained volunteers. Alongside offering support to all those affected by any of the hypermobility syndromes, we provide publications and information / education programme's for schools, colleges, and health professionals.
Joint replacement surgery (arthroplasty) : www.nhsinform.scot/kneereplacement and : www.nhsinform.scot/hipreplacement This website offers information and advice about having a Hip Replacement, and what to expect. It also has suggestions for alternitives to a full replacement surgery.
- : bonesmart.org/
- You do not need to inform the DVLA if you have a knee replacement, but should wait until doctors say you may drive
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Kaposi's Sarcoma : www.cancerresearchuk.orgprovide information and support for this rare type of cancer that can affect both the skin and internal organs.
Kidney dialysis : www.nhsinform.scot/ This website offers information and advice about Kidney dialysis or failure. The side effects and complications
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Limb Disability : www.limbless-association.org believe in an equal world where everyone can participate in their community irrespective of any disabilities. they provide information and support.
Lupus UK www.lupusuk.org.uk supporting people with systemic lupus and discoid lupus and assisting those approaching diagnosis. They produce an informative national magazine with lupus articles, letters, reports, and photographs.
Lymphoedema : www.thebls.com their aim of promoting professional standards in lymphoedema care and treatment is supported by our objectives: The website has a host of resources and list of events.
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Marfan syndrome : www.marfan.org provide a supportive community for everyone affected by Marfan syndrome and related conditions. always have the latest and most accurate information.
Myasthenia gravis : www.myaware.org/ Muscular Dystrophy UK gives support and advice and a listening helpline to people who suffer and their families.
Myocardial Infarction or Heart attack (TIA) : www.bhf.org.uk A heart attack is life-threatening. If you think you or anyone else is having a heart attack, call 
999 for an ambulance immediately. If you’re not sure, it’s still important to seek medical attention to be on the safe side.
Motor neurone disease : www.mndscotland.org.uk
If you or someone you know has been diagnosed with MND, Motor Neurone Disease Scotland are here to help. Motor Neurone Disease Scotland offer advice and information about living with MND, and support to lessen many of the burdens associated with the disease.
Multiple sclerosis : www.mssocietyscotland.org.uk Whether you have MS, or care about someone who does, our community is here for you through the highs, lows and everything in between.
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Narcolepsy : www.narcolepsy.org.uk Are here to support people with narcolepsy, their families, carers and others interested in improving their quality of life.
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Optic neuritisis : www.nmouk.nhs.uk
It is essential for people with NMO to be treated early in their condition to prevent relapses and disability. there is a clinic in Edinburgh
Osteoporosis : theros.org.uk/ provide support to help you live as active a life as possible. Royal Osteoporosis Society is the only UK wide charity dedicated to improving the diagnosis, prevention and treatment of osteoporosis
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Paget's disease : www.paget.org.uk
The Paget's Association is the one UK organisation that focuses solely on this ailment. It acts as a resource for those with Paget's disease of bone,offering high quality information and support when necessary.
Parkinson's disease : www.parkinsons.org.uk Support For You If you're affected by Parkinson's, Parkinson's UK help you find the right support. Parkinson's UK has wide range of publications, including information sheets, booklets and DVD's, answer questions on all aspects of the ailment, helping people with Parkinson's, their families and carers
Post traumatic stress disorder : www.mind.org.uk/ Information & support When you’re living with a mental health problem, or supporting someone who is, having access to the right information, about a condition, treatment options, or practical issues.
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Respite Care is any sort of help and support that enables a person to take a break from the responsibility of caring for somebody else.
Restricted Growth (Dwarfism) : rgauk.org/ The Restricted Growth Association endeavours to provide support and information to people who have genetic growth conditions that result in dwarfism.
Rickets is a rare disease that affects bone development in children. : www.mygov.scot
Best Start provide help and support also vouchers for fruit, vegetables, milk and vitamins for certain mothers and children under 4 year.
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Seasonal Affective Disorder (SAD) affects people mostly in the winter months. : www.lumie.com Lumie provides information and equipment for light therapy and its benefits this is for information purposes only. It is not a substitute for professional medical advice. These are not available on the NHS.
Scoliosis & Kyphosis : www.sauk.org.uk information and advice plus treatment and symptoms, diagnosis and causes, where to find a specialist and newsletter.
: www.alliance-scotland.org.uk A way of living and working that means people living with long term conditions feel more in control of their own health and wellbeing.
Slipped Disc, also prolapsed or herniated disc : www.backcare.org.uk Back Care was the brainchild of a local businessman, Stanley Grundy, who established the charity after suffering a back injury caused by a sailing accident. At the time, he was concerned about the lack of information and support for back pain sufferers at the time. For nearly 50 years Back Care has been dedicated to educating the public throughout the UK and wider further afield in ways of preventing and alleviating back pain. The charity aims to significantly reduce the burden of back & neck pain by providing information, guidance and advice to all people and organisations those affected by such pain.
Sjögren's Syndrome : www.bssa.uk.net is a self-help organisation, the BSSA is dedicated to providing mutual support and information to individuals affected by this disabling disease. We have regional support groups throughout the UK whose members include sufferers and supporters who work together in helping one another cope with the day-to-day challenges of this debilitating and distressing condition.
Spina Bifida Hydrocephalus and young people : www.hydrocephalusscotland.org.uk/
Spina Bifida Hydrocephalus Scotland has designed this site for parents and carers of young people with hydrocephalus. The information may also be useful for adults with hydrocephalus, teachers and support workers.
Spinal Injuries Association : www.spinal.co.uk Provide help and guidance for those with Spinal injuries. SIA believes that the best support for spinal cord injured people comes from their peers. For this reason, the majority of our services are delivered by spinal cord injured people who share their lived experiences for the benefit of newly injured people.
Spinal Muscular Atrophy trust : smatrust.org offer free confidential information, emotional support, practical advice and guidance to anyone affected by Spinal Muscular Atrophy who is living in the UK.
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Tourette Scotland : www.tourettescotland.org/ is a registered charity who aim to provide information, advice and support for children and adults with TS and everyone involved in their lives, bring together individuals with TS and associated disorders, in order to share information, produce newsletters, advice sheets and leaflets, raise awareness amongst public and professionals in Scotland
Tremors Essential : www.tremor.org.uk hopes that the various information within their website will be helpful to you, your family and friends to make informed choices about how you live your daily lives. They are trying to provide information that will help ease some of the concerns you may have about Tremors.
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Visual Impairment : sightscotland.org.uk/ in Scotland is the leading charity working with blind and partially sighted people in Scotland.
Exophthalmos : www.btf-thyroid.org/ it is also called Thyroid eye disease. The British Thyroid Foundation offer suggestions for when TED is active and also when it has burnt out.
Macular degeneration : sightscotland.org.uk/ Age-related macular degeneration (AMD) both wet and dry symptoms and help you to live better with this condition.
Lothian Sound : lothiansound.org.uk is a weekly audio recording of news and events read mainly from the Edinburgh Evening News. Is Scottish based in Edinburgh, Scotland, Lothiansound is run entirely by Volunteers and supplied free of charge to over 550 Listeners. 
To Listeners who are registered blind or partially sighted, even the postage is free, thanks to the Post Office "Articles for the Blind" arrangement. Apart from news items, there is a Scottish quiz and notices from like-minded organisation's. These can vary from holidays for visually impaired people to audio-description in local theatres or telephone numbers/addresses to contact for useful information.
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